To give patients additional access to expert advice on scoliosis and plagiocephaly, Boston Orthotics & Prosthetics has created two new Facebook groups for patients and parents: the Boston Brace Scoliosis Support Group and the Boston Band & Plagiocephaly Support Group.
“There are many scoliosis support groups out there, on Facebook and other platforms, and a lot of the information and comments you find can be confusing or misleading,” says Katlin Rivest, Certified Prosthetist Orthotist with Boston O&P at Boston Children’s Hospital. “We wanted to create a place where scoliosis patients and their parents could get information on the non-operative management of scoliosis while helping with our expertise in the industry.” The family of Boston Brace options includes the Boston Brace 3D, Boston Brace Night Shift, Boston Brace Baby and our neuromuscular options.
In the new Boston Brace Scoliosis Support Group, members are encouraged to share their stories with other patients, but Boston O&P practitioners will also visit the group regularly to answer specific questions and offer encouragement and advice.
The Boston Band & Plagiocephaly Support Group is designed to give parents of children wearing the Boston Band a place to ask for and receive professional advice from a known, expert source.
Other plagiocephaly support groups may offer conflicting information, but with the Boston Band & Plagiocephaly Support Group, not only can members share their experiences and advice with other parents, they can also get answers directly from expert orthotists.
“Plagiocephaly is a relatively common condition that responds well to treatment, but for a new mom, hearing a plagiocephaly diagnosis can be scary and confusing,“ says Steve Slawinski, Certified Orthotist and Clinic Director of the Boston O&P clinic in Voorhees, New Jersey. “While all our plagiocephaly clinicians can answer questions and address concerns during appointments, we also wanted to create a separate, safe online space for parents to talk about their plagiocephaly concerns and experiences, and get answers from an expert.”